HEAL London

Low-dose naltrexone

Hello,

I'm interested to know if anyone has tried taking low-dose naltrexone? I've read about it, and it seems to be popular in the States, and to be successful in increasing CD4 counts. I know a fair number of people in the UK take it to treat MS, but after speaking to the LDN research trust, the number of people diagnosed with HIV taking it is apparently minimal. Anyone have any more info on this?

Thanks,

Caroline

Re: Breaking in your doctor

The point here is that everyone is entitled to do whatever it is with their bodies. Do anti retrovirals improve outcomes, in every study I've seen yes. Does that mean you have to take them? Of course not, it is your body and your decisions are your own.

However, what you have to realise, is that with a decreased level of immunity and predisposition to opportunistic infections the differentials for any symptom are much more and in many cases much more severe, so most GPs will refer you on as they do not want to be responsible for missing something big. However, regardless of whether you take ARVs or not, you should stress that your right to medical care are the same.

Re: Dishonest doctoring

Can you be more specific regarding how the Doctors are behaving unethically?

"It seems that they so fervently believe people should be taking AIDS drugs that they are willing to lie through their teeth and use deception to get people to take them, presumably on the basis that the end justifies the means."

Well, no. We aren't lying through our teeth, we are meerly practicing evidence based medicine. If you look at all the large cohort studies, life expectancy on ARVs is very much improved.
We aren't using deception. However, I have seen patients that refuse ARV's and they did die not long after. I am to young to remember the 1980s, and I think you probably are too, if you were you wouldn't need to question the efficacy of ARV's. However, if you'd like all the cohort studies I have them

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Re: Dishonest doctoring

You mean beyond the classic you will be dead in 6months if you dont start now? I had that, then it was you have cancer because I had a cyst, then it was your stats are too low -you gonna die, then it was you have kidney failure and may need a transplant if you dont take ARVs now, then it was come in every week so we can see how your liver is doing because it has AIDS, then it was you must have HepB coz your liver stats are off! All of which have been zero prognosis, not one came to pass. This from a guy who wouldnt discuss athletes foot, and from a guy who when sending reference letters clearly states 'we have recommended ARVs for this patient but they not taking it'? Impunity. ie hand off our patient! They wont help you and they sure as hell wont let anyone else.

Re: Breaking in your doctor

My brief experience, as someone who has never taken ARVs and continues to do the quarterly thing, is that no other medicine is applied as long as ARVs are not taken. There is no protocol for treating the unARVed. It is a major black hole in the thought patterns of the Drs about what to do first or what to do next. If you present with dandruff and are poz and not on meds I bet they cant think what to do next. The fact that issues remaining untreated for a long time are likely only to get worse, Im sure, does occur to them, but then that would only prove their point. So help is not coming from that avenue.

Disclosing beyond the infectious diseases department yields the samne result. Its please get back on your ARVs from even the most proficient naturopath. For that reason I suggest not telling at all. Not dentists or anyone from whom objectivity would be helpful.

Ignorance is bliss

It is said more than half of those infected with HIV do not know they are infected. Seems a lot of people are passing it on then, getting married, wedding ad producing babies. Evidence - population is growing in Africa. We seem not to see the graves in conformity with a pandemic. We see graves in correlation with the TB, Malaria, Cholera and syphhilis incidences. I guess those not diagnosed with the HIV are living normal lives ( they are now called non-progressors by the dogma) as compared to those diagnosed and are forced to take the poisonous drugs, while going through mental and psychological toture. See - one can live some 50 yrs or more without medication and stay health like any normal being (we all get sick once in a while) or one could be on HIV drugs and suffer side effects for the same or lessor period.

Introducing rethinking AIDS to people

I have always won people by asking them if they are aware that there is a controversy about the established HIV/AIDS theory. See, people do not want to be caught unawares of the latest of what is going on. Once they light up their face to acknowledge their ignorance, you have provoked their thought process, then live it at that. If they ask you for more informatio - give them the necessary websites. A few days later discuss it with them if you can still contact them.

Re: Introducing new partners to questioning HIV/AIDS

Finding out where they stand first seems like a good first step. Has anyone done it successfully?

Re: Introducing new partners to questioning HIV/AIDS

I guess the best way would to be to ask where to they stand and then take it from there, some may not be aware of the rethinking, some with enquiring minds will be willing to look at the info you give. others may find it offensive.

Dishonest doctoring

I've had a number of reports of doctors and other medical professionals not behaving ethically all the time when dealing with people diagnosed HIV+. It seems that they so fervently believe people should be taking AIDS drugs that they are willing to lie through their teeth and use deception to get people to take them, presumably on the basis that the end justifies the means.

Have you had any experiences where medical professionals did not behave in an ethical manner with you, leaving aside for a moment the issue of whether they were right about HIV or not?

Discrimination from colleagues

Has anyone been open about having an HIV+ diagnosis at work? And how have you handled it? And, how did people respond?

And what about sharing that your own perspective of the meaning of an HIV+ diagnosis differed somewhat from what most people think? Were you villified?

Breaking in your doctor

It's come to my attention that many people have trouble with their ordinary GP when their GP finds out they've been diagnosed HIV+. I've had one report of a doctor 'freaking out' when his patient told him they'd been diagnosed HIV+ and stopped taking the meds after a short period of time.

Has anyone found an effective way of getting your doctor on side?

Introducing new partners to questioning HIV/AIDS

I've found that when dating new partners, a tricky issue to bring up is when and how to discuss with them what I spend a lot of my time doing - that is, challenging the orthodox perspective on HIV and AIDS.

I've had some very surprising experiences so far: One guy I was chatting with online told me he was diagnosed HIV+, and I said it didn't bother me, and was he aware that...? To my surprise, his next message was full of fury - "Don't challenge MY HIV", and when I replied I found he'd blocked me . Another guy I stupidly discussed this whole issue with on a first date (I genuinely thought he could handle it) decided he wanted no further contact as he thought I must be lying about my own HIV negative status (whatever that means).

Have you found an effective way to introduce it to people?